Deinstitutionalization and People with Intellectual Disabilities: In and Out of Institutions

By: Kristjana Kristiansen and Christine M Bigby and Kelley Johnson and Rannveig Traustadottir

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Synopsis: This international collection of personal and professional perspectives takes a fresh look at deinstitutionalization. It addresses the key steps towards deinstitutionalization as they have been experienced by people with intellectual disabilities: living inside total institutions, moving out, living in the community and moving on to new forms of both institutionalization and community life. Many of the chapters are contributions from people with intellectual disabilities. They are based on a life history approach and give a unique personal account of the lived experiences of institutional life and deinstitutionalization by the people who were subject to it. The life story of Tom Allen (19Â12-1991) is interspersed throughout the book, providing a powerful testimony of the way institutions and deinstitutionalization have affected one individual over the course of almost a century. Researchers and practitioners will find this book an insightful and accessible reflection on deinstitutionalization, and a source of encouragement for improving the lives of people with intellectual disabilities.