The New Genetics: Social and Ethical Implications for Users and Providers (1999)

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Synopsis
ciples and recommendations on genetic service provision in a multidisciplinary way. At the workshop the main issues and principles that are presently emerging as integral parts of national and international recommendations on genetic service provision such as: - voluntary provision of services - protection of choices - patient autonomy - informed consent - nondirective counseling - confidentiality were discussed and the participants tried to assess how these principles are known, met or violated in practice according to the newest up-to-date research findings and to identify existing gaps in data provision, research and policy analy­ sis. The workshop brought together an international multidisciplinary group of well known experts including health professionals, molecular biologists, social scientists and ethicists as well as representatives of patient organizations and pol­ icy makers who presented and discussed the newest data and survey findings on selected ethical and social issues in the provision of new genetic tests. The main scientific contributors to this meeting have been awarded grants from ELSI, ESLA, BIOMED 1 and BIOMED 2 programs as well as national grants.
Copyright:
1999

Book Details

Book Quality:
Publisher Quality
ISBN-13:
9783642584862
Related ISBNs:
9783540659204
Publisher:
Springer Berlin Heidelberg
Date of Addition:
Copyrighted By:
Springer-Verlag Berlin Heidelberg
Adult content:
No
Language:
English
Has Image Descriptions:
No
Categories:
Nonfiction, Science, Social Studies, Law, Legal Issues and Ethics, Medicine
Submitted By:
Bookshare Staff
Usage Restrictions:
This is a copyrighted book.
Edited by:
Irmgard Nippert
Edited by:
Heidemarie Neitzel
Edited by:
Gerhard Wolff

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