Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine (Studies in Media and Communications #23)

By: Virginia M. Miori and Daniel J. Miori and Flavia Burton and Catherine G. Cardamone

Sign Up Now! Already a Member? Log In
You must be logged into UK education collection to access this title. Learn about membership options, or view our freely available titles.

Synopsis: Though algorithms are chosen to eliminate bias in the Learning Health Systems (LHS) that support medical decision making, we are left with unconscious bias present in data due to lack of representation for marginalized populations, particularly in palliative care. Medical practitioners often lack historical foundations for decision making for patients in underrepresented populations, which lead to palliative patients being subjected to uneven quality of care and an absence of treatment goals due to a lack of advocacy and other challenges. Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine reviews the ethical foundations that drive our approach, data collection (public data, private data and data privacy), data stratification methodologies to support marginalized and intersectional populations, analysis techniques, algorithmic development to maintain privacy, survival analysis, result interpretation, LHS development, and LHS implementation. These methodologies address the HIPAA Privacy Rule, which clearly establishes the standard to protect digitally held health care data. Informing both research and practice, Data Ethics and Digital Privacy in Learning Health Systems for Palliative Medicine brings attention to an important issue that lies at the intersection of medicine, science, and digital technology and communication.

Book Quality:: Publisher Quality
Book Size:: 248 Pages
ISBN-13:: 9781802623093
Related ISBNs:: 9781802623116, 9781802623109
Publisher:: Emerald Publishing Limited
Date of Addition:: 11/14/23
Copyrighted By:: Virginia M. Miori
Adult content:: No
Language:: English
Has Image Descriptions:: No
Categories:: Nonfiction, Social Studies, Law, Legal Issues and Ethics, Medicine, Sociology
Submitted By:: Bookshare Staff
Usage Restrictions:: This is a copyrighted book.
Edited by:: Virginia M. Miori
Edited by:: Daniel J. Miori
Edited by:: Flavia Burton
Edited by:: Catherine G. Cardamone