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A Guide to Duchenne Muscular Dystrophy: Information and Advice for Teachers and Parents (PDF)

by Janet Hoskin Kate Maresh Francesco Muntoni Veronica Hinton Lianne Abbot Victoria Selby James Poysky David Schonfeld Nick Catlin Celine Barry Jon Hastie Mark Chapman

The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood. Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.

Guide to EU and UK Pharmaceutical Regulatory Law


In the European Union (EU), its Member States and the United Kingdom (UK) post-Brexit, as elsewhere, the marketing of pharmaceuticals is subject to an ever more complex web of legislation and regulation, resulting from the intense scrutiny necessary to ensure such essential products are not only efficacious but also safe. This useful volume lays out this system with extraordinary clarity and logic. Adopting a Europe-wide perspective on the law governing pharmaceuticals, expert authors from the law firm Bird & Bird LLP map the life cycle of a medicinal product or medical device from development to clinical trials to product launch and ongoing pharmacovigilance, offering comprehensive and unambiguous guidance at every stage. Following a brief overview of how the exit from the EU by the UK currently affects the regulatory regime, as well as an introductory overview focusing on the regulatory framework for pharmaceuticals in Europe – from its underlying rationales to the relevant committees and agencies – each of the following twenty-one incisive chapters examines a particular process or subject. Among the many topics and issues covered from both an EU and UK perspective are the following: clinical trials; stages and standards for creating a product dossier; obtaining a marketing authorisation; how and when an abridged marketing authorisation procedure can be used; criteria for conditional marketing authorisations; generic products and ‘essential similarity’; paediatric use and the requisite additional trials; orphan medicinal products; biologicals and ‘biosimilars’; homeopathic, herbal and similar medicines; medical devices; pandemics, epidemics and vaccines; pharmacovigilance; parallel trade; advertising; and relevant competition law, intellectual property rights and data protection regulation. In addition, sample forms and URLs for the most important reference materials are included. Pharmaceutical lawyers and regulatory advisers, both in-house and in private practice, will welcome this unique book. It offers immeasurable value for all who need to understand the process of bringing a medicinal product or medical device to market and the continuing rights and obligations.

A Guide to Getting the Best Health Care for Your Child (The Praeger Series on Contemporary Health and Living)

by Roy Benaroch M.D.

Roy Benaroch, MD, explains how to find your ideal pediatrician, how to get the most out of every visit, how to schedule to your advantage, and other office tricks. Perhaps more important, he explains how to assure your pediatrician has kept up to date, and how to understand what lab reports and tests mean and whether they are necessary. The best ways to choose and use all aspects of pediatric care are covered: traditional medicine, alternative medicine, hospitals, emergency rooms, telephone calls, insurance, sources of medical information, and more.Every profession has its secrets that would make all of our lives better if we knew that inside' information. In this book, Roy Benaroch. MD reveals the secrets' of pediatrics that could help every parent and child. Benaroch offers practical information about choosing and using a pediatrician's office, from how to avoid waiting for an appointment to how to know a medical practice that is of poor quality. He also explains how to find your ideal pediatrician, how to get the most out of every doctor visit, and how to schedule to your advantage, as well as other office tricks. This is a practical and useful guide that tells parents exactly what they need to know. The best ways to choose and use all aspects of pediatric care are covered: traditional medicine, alternative medicine, hospitals, emergency rooms, telephone calls, insurance, sources of medical information and more.Benaroch explains how to assure your pediatrician has kept his or her knowledge up to date in the fast-changing field of medicine, how to understand what lab reports and tests mean and whether they are necessary, and how to know when medications or the use of alternative medicine may be fine - or dangerous - for your child. This pediatrician, himself a father of three, also tells us the best way to choose insurance policies for children's health care, and get the most we can out of the insurance policy chosen.

A Guide to Happiness: Using Mindfulness and Meditation

by Tara Ward

Embark on a journey to happiness and fulfillment in seven simple steps A Guide to Happiness is a seven-step personal development programme that will help you rediscover your zest for life. The techniques and exercises in this book are designed to help you plot out your own way to happiness in small, actionable steps. • Includes mindful exercises in every chapter • Features plans for health and happiness for you to fill in • Includes an exclusive audio link so you can listen to guided meditations Say goodbye to stress and the perils of feeling low as you set off on a deeply satisfying personal journey.

A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending without Breaking (2nd edition)

by Alan Hakim Isobel Knight

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending without Breaking (2nd edition) (PDF)

by Alan Hakim Isobel Knight

Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

The Guide to Living with HIV Infection: Developed at the Johns Hopkins AIDS Clinic (A Johns Hopkins Press Health Book)

by Ann K. Finkbeiner John G. Bartlett

The Guide to Living with HIV Infection is the most complete source of medical, emotional, social, and practical advice available for those infected with HIV and their loved ones. Developed at the Johns Hopkins AIDS Clinic, the guide provides essential information for making decisions about treatment and testing in a world transformed by new research and pharmacotherapy.In this thoroughly updated sixth edition, Dr. John Bartlett and Ann K. Finkbeiner address the latest information about risks of transmission, viral mutations that confer drug resistance, and new, rapid, HIV testing. They offer guidelines for Highly Active Antiretroviral Therapy (HAART), a therapy protocol that has dramatically increased life expectancy for HIV-positive people. They describe how to follow HAART and when to change drug regimens, the symptoms of and treatments for HAART side effects, and the costs of and insurance coverage for HAART. They also outline the possibilities for a diagnosis of "no detectable virus."Accompanied by updated references and resources, the sixth edition of The Guide to Living with HIV Infection offers new hope for people living with a virus that once left no hope at all.

A Guide to Survivorship for Women Who Have Ovarian Cancer (A Johns Hopkins Press Health Book)

by Robert E. Bristow Terri L. Cornelison F. J. Montz

This updated and expanded second edition offers a wealth of information to ease the physical and emotional suffering of women who have ovarian cancer. The expert authors include highly respected and experienced oncologists, gynecologic oncology nurse specialists, researchers, and ovarian cancer survivors. Throughout the book they emphasize the concepts of survivorship, or living life well in the face of daunting uncertainties, and self-determination: the right of each patient to be informed, involved, and in control of her care.Detailed information on diagnosis and treatment, including surgery, chemotherapy, radiation, pain management, and integrative medicine, constitutes a key feature of the book. Also covered in depth are image recovery, nutrition, pain control, and genetic testing. Women who have ovarian cancer share advice on coping with the life-changing disease and its treatments.Offering candor, compassion, and hope, this remarkable book explains how to add quality to your life and take care of medical and social needs while living with ovarian cancer.

A Guide to Symptom Relief in Palliative Care, 6th Edition

by Claude Regnard Mervyn Dean

This established and well-regarded Guide describes the management of patients with advanced disease. Its foundation is a clinical decision-making approach in which the patient's information guides the professional's approach to appropriate management. This Sixth Edition has been fully updated, reflecting the latest advances in knowledge and care of cancer and non-cancer patients with advanced disease, including children and people with severe communication difficulties. Sections on symptoms other than pain and emergencies are set out alphabetically, with the Emergencies section now located at the end of the book for ease of reference. The Drug Information section has been extensively updated, and colour and design refinements introduced throughout for greater clarity and emphasis. All references continue to be categorised to make their evidence base clearer. Maintaining the high standard set by previous editions over the past quarter-century, this continues to be the definitive guide to palliative care symptom relief for professionals in a wide variety of caring environments.

A Guide to Symptom Relief in Palliative Care, 6th Edition

by Claude Regnard Mervyn Dean

This established and well-regarded Guide describes the management of patients with advanced disease. Its foundation is a clinical decision-making approach in which the patient's information guides the professional's approach to appropriate management. This Sixth Edition has been fully updated, reflecting the latest advances in knowledge and care of cancer and non-cancer patients with advanced disease, including children and people with severe communication difficulties. Sections on symptoms other than pain and emergencies are set out alphabetically, with the Emergencies section now located at the end of the book for ease of reference. The Drug Information section has been extensively updated, and colour and design refinements introduced throughout for greater clarity and emphasis. All references continue to be categorised to make their evidence base clearer. Maintaining the high standard set by previous editions over the past quarter-century, this continues to be the definitive guide to palliative care symptom relief for professionals in a wide variety of caring environments.

A Guide To The Bach Flower Remedies: The Essence Within: An Illustrated Guide To The Bach Flower Remedies

by Julian Barnard

This book is a thorough and yet straightforward guide to the Bach Flower Remedies and how to use and understand them. It is written in the language of our time while it retains the timeless clarity of Dr Bach's work. This book is thoughtful and yet easy to read.The Bach Flower Remedies are a simple and natural method of healing which works with the emotional state of a person rather than the physical illness. They act to harmonise and balance the personality, to counteract such things as irritation, fears and guilt which Dr Bach saw as the real cause of illness and unhappiness.Julian Barnard is director of Flower Remedy Programme and Healing Herbs Ltd, one of the companies who make flower remedies in England. He also works as a writer and teacher, living with his family in rural Herefordshire

A Guide to the Spiritual Dimension of Care for People with Alzheimer's Disease and Related Dementia: More than Body, Brain and Breath

by Eileen Shamy

This sensitive and informative book provides guidelines for pastoral visits to people with dementia, showing how to empathise with and support individuals during a visit. Emphasising the importance of retaining dignity and freedom of choice, it also presents practical advice and provides frameworks for leading worship for those with dementia.

A Guide to the World of Dreams: An Integrative Approach to Dreamwork

by Ole Vedfelt

In A Guide to the World of Dreams, Ole Vedfelt presents an in-depth look at dreams in psychotherapy, counselling and self-help, and offers an overview of current clinical knowledge and scientific research, including contemporary neuroscience. This book describes essential aspects of Jungian, psychoanalytic, existential, experiential and cognitive approaches to dreams and dreaming, and explores dreams in sleep laboratories, neuroscience and contemporary theories of dream cognition. Vedfelt clearly and effectively describes ten core qualities of dreams, and delineates a resource-oriented step-by-step manual for dreamwork at varying levels of expertise. For each core quality, key learning outcomes are clarified and resource-oriented, creative and motivating exercises for practical dreamwork are spelled out, providing clear and manageable methods. A Guide to the World of Dreams also introduces a new cybernetic theory of dreams as intelligent, unconscious information processing, and integrates contemporary clinical research into this theory. The book even includes a wealth of engaging examples from the author’s lifelong practical experience with all levels and facets of dreamwork. Vedfelt’s seminal work is essential reading for psychotherapists, psychologists, counsellors, and even psychiatrists, and could well be a fundamental textbook for courses at high schools, colleges, universities and even in adult-education classes. The book’s transparent method and real-life examples will inspire individuals all over the world who seek self-help or self-development – any reader will be captivated to discover how knowledge of dreams stimulates creativity in everyday life and even in professional life.

A Guide to the World of Dreams: An Integrative Approach to Dreamwork

by Ole Vedfelt

In A Guide to the World of Dreams, Ole Vedfelt presents an in-depth look at dreams in psychotherapy, counselling and self-help, and offers an overview of current clinical knowledge and scientific research, including contemporary neuroscience. This book describes essential aspects of Jungian, psychoanalytic, existential, experiential and cognitive approaches to dreams and dreaming, and explores dreams in sleep laboratories, neuroscience and contemporary theories of dream cognition. Vedfelt clearly and effectively describes ten core qualities of dreams, and delineates a resource-oriented step-by-step manual for dreamwork at varying levels of expertise. For each core quality, key learning outcomes are clarified and resource-oriented, creative and motivating exercises for practical dreamwork are spelled out, providing clear and manageable methods. A Guide to the World of Dreams also introduces a new cybernetic theory of dreams as intelligent, unconscious information processing, and integrates contemporary clinical research into this theory. The book even includes a wealth of engaging examples from the author’s lifelong practical experience with all levels and facets of dreamwork. Vedfelt’s seminal work is essential reading for psychotherapists, psychologists, counsellors, and even psychiatrists, and could well be a fundamental textbook for courses at high schools, colleges, universities and even in adult-education classes. The book’s transparent method and real-life examples will inspire individuals all over the world who seek self-help or self-development – any reader will be captivated to discover how knowledge of dreams stimulates creativity in everyday life and even in professional life.

A Guide to Transgender Health: State-of-the-Art Information for Gender-Affirming People and Their Supporters (Sex, Love, and Psychology)

by Rachel Ann Ph.D. Katie Wynne Ph.D.

Provides the most up-to-date information on transgender science and its applications, for gender-diverse people, their supporters, and the professionals who assist them to lead healthy, happy, and successful lives.The number of people presenting at gender clinics worldwide for assistance has increased exponentially in the last decade. Transgender people also have become much more prominent in the media. An increase in political populism, however, has brought unprecedented attacks on trans* people. Covering a wealth of topics relevant to transgender people and their supporters, both social and professional, Heath and Wynne help readers to see through the flawed arguments of those who wish to inflict damage on the trans* community. The content of this book ranges from theoretical ideas about the origin of gender diversity to practical solutions for trans* people to enjoy life in their chosen gender. Physical health topics include hormone therapy, puberty blockers, breast augmentation/reduction, gender confirmation surgery, and speech therapy. Mental health topics include dealing with discrimination, bullying, and transphobia. The text is presented so that it can be understood with no scientific background, but is also highly relevant to the health professional. Copious footnotes and references allow those wishing to delve more deeply into the topics to do so easily. The book is also supported by readily accessible resources available online and on social media.

A Guide to Transgender Health: State-of-the-Art Information for Gender-Affirming People and Their Supporters (Sex, Love, and Psychology)

by Rachel Ann Ph.D. Katie Wynne Ph.D.

Provides the most up-to-date information on transgender science and its applications, for gender-diverse people, their supporters, and the professionals who assist them to lead healthy, happy, and successful lives.The number of people presenting at gender clinics worldwide for assistance has increased exponentially in the last decade. Transgender people also have become much more prominent in the media. An increase in political populism, however, has brought unprecedented attacks on trans* people. Covering a wealth of topics relevant to transgender people and their supporters, both social and professional, Heath and Wynne help readers to see through the flawed arguments of those who wish to inflict damage on the trans* community. The content of this book ranges from theoretical ideas about the origin of gender diversity to practical solutions for trans* people to enjoy life in their chosen gender. Physical health topics include hormone therapy, puberty blockers, breast augmentation/reduction, gender confirmation surgery, and speech therapy. Mental health topics include dealing with discrimination, bullying, and transphobia. The text is presented so that it can be understood with no scientific background, but is also highly relevant to the health professional. Copious footnotes and references allow those wishing to delve more deeply into the topics to do so easily. The book is also supported by readily accessible resources available online and on social media.

A Guide to Understanding Dietary Supplements

by Shawn M Talbott

Written by one of the foremost experts on sports nutrition and performance, A Guide to Understanding Dietary Supplements takes a critical look at the dietary supplement industry. With an estimated 60 percent of adult Americans using dietary supplements every day, the need for a thorough examination of the hundreds of products on the market is long overdue. This comprehensive guide (Selected as an Outstanding Academic Title by Choice Magazine) presents straightforward analysis from a consumer's perspective, giving you the facts on more than 140 supplements and information on which supplements work (and which don't!) for a wide range of health conditions-from preventing cancer and heart disease to fighting diabetes and depression.United States Department of Agriculture surveys show that more than 70 percent of Americans fail to achieve daily recommended levels for many vitamins and minerals. With today's emphasis on fitness, millions are investing their money and health in quick-fix solutions-supplements promoted as cure-alls to right nutritional wrongs, lower the likelihood of disease, and work dietary miracles. A Guide to Understanding Dietary Supplements presents a more realistic view of supplements as neither miracle cure nor nutritional sham, but as consumer products to be accepted or rejected based on scientific fact, not fitness fantasy.A Guide to Understanding Dietary Supplements looks at the pros and cons of dietary supplements in the areas of: weight loss bones and joints energy, brain, and mood heart, eye, and gastrointestinal health male and female health cancer, diabetes, and the immune system sports and ergogenic aidsIn addition, the book presents an overview of the dietary supplement industry and the regulations that govern it and looks at the process for developing new products. Designed to cut through the confusion surrounding dietary supplements, A Guide to Understanding Dietary Supplemens is an invaluable resource for students, educators and professionals who deal with nutrition, exercise, physical education, nursing, and anyone else interested in health and fitness.

A Guide to Understanding Dietary Supplements

by Shawn M Talbott

Written by one of the foremost experts on sports nutrition and performance, A Guide to Understanding Dietary Supplements takes a critical look at the dietary supplement industry. With an estimated 60 percent of adult Americans using dietary supplements every day, the need for a thorough examination of the hundreds of products on the market is long overdue. This comprehensive guide (Selected as an Outstanding Academic Title by Choice Magazine) presents straightforward analysis from a consumer's perspective, giving you the facts on more than 140 supplements and information on which supplements work (and which don't!) for a wide range of health conditions-from preventing cancer and heart disease to fighting diabetes and depression.United States Department of Agriculture surveys show that more than 70 percent of Americans fail to achieve daily recommended levels for many vitamins and minerals. With today's emphasis on fitness, millions are investing their money and health in quick-fix solutions-supplements promoted as cure-alls to right nutritional wrongs, lower the likelihood of disease, and work dietary miracles. A Guide to Understanding Dietary Supplements presents a more realistic view of supplements as neither miracle cure nor nutritional sham, but as consumer products to be accepted or rejected based on scientific fact, not fitness fantasy.A Guide to Understanding Dietary Supplements looks at the pros and cons of dietary supplements in the areas of: weight loss bones and joints energy, brain, and mood heart, eye, and gastrointestinal health male and female health cancer, diabetes, and the immune system sports and ergogenic aidsIn addition, the book presents an overview of the dietary supplement industry and the regulations that govern it and looks at the process for developing new products. Designed to cut through the confusion surrounding dietary supplements, A Guide to Understanding Dietary Supplemens is an invaluable resource for students, educators and professionals who deal with nutrition, exercise, physical education, nursing, and anyone else interested in health and fitness.

Guided By Angels: There Are No Goodbyes - My Tour Of The Spirit World

by Paddy McMahon

Have you ever wondered if there is there life after death? If so, where do people go when they die? Whether it’s possible to keep in contact with your loved ones after they die? And are they able to help you? Will you meet them again? There Are No Goodbyes provides answers and comfort for all of these questions, and more.

Guided By Angels: There Are No Goodbyes, My Tour Of The Spirit World

by Paddy McMahon

Guided by Angels can either be read as a full-length eBook or in 3 eBook-only parts. This is PART 2 of 3 (Chapters 5-10 of 17).

Guided By Angels: There Are No Goodbyes, My Tour Of The Spirit World

by Paddy McMahon

Guided by Angels can either be read as a full-length eBook or in 3 eBook-only parts. This is PART 1 of 3 (Chapters 1-4 of 17).

Guided By Angels: There Are No Goodbyes, My Tour Of The Spirit World

by Paddy McMahon

Guided by Angels can either be read as a full-length eBook or in 3 eBook-only parts. This is PART 3 of 3 (Chapters 11-17 of 17).

The Guided Meditation Handbook: Advice, Meditation Scripts and Hasta Mudra for Yoga Teachers

by Georgia Keal

For yoga teachers who want to add a meditation element to their classes, this collection of guided meditations is the perfect resource. It also includes tips on setting the scene for a truly relaxed environment, alongside advice for on how to create your own meditations that can be tailored to the needs of yoga students.

Guided Self-Rehabilitation Contract in Spastic Paresis

by Jean-Michel Gracies

This book is an informative guide for both the patient and therapist, and provides a series of exercises that target the most important muscles for those with spastic paresis. Actively practicing the exercises prescribed in this self-rehabilitation manual will allow the patient to see continued improvement in their muscle functioning. Spastic paresis is the consequence of a central nervous system disorder such as a stroke, traumatic brain or spinal cord injury, multiple sclerosis, or a tumor of the nervous system, conditions that may have occurred in childhood or adulthood. In spastic paresis two problems coexist: the word 'paresis' means that when the brain sends a command to a muscle to contract, this order is incompletely received by the muscle; the word 'spastic' indicates that at the same time muscles cannot relax normally and have a tendency to be spontaneously overactive. A daily program of prolonged stretching and an intensive motor training program using unassisted large amplitude rapid alternating movements is recommended to gradually increase brain command effectiveness.

Guidelines for the Assessment of General Damages in Personal Injury Cases

by Judicial College

The Guidelines for the Assessment of General Damages are designed to provide a clear and logical framework for the assessment of damages in personal injury cases. The first edition of this title was regarded as a landmark in personal injury practice. Each succeeding issue has built on this reputation and the book has now firmly established itself as essential reading for all those involved in the area of personal injury litigation. This new edition has updated the award figures to take into account the rise in inflation. The book also considers a small number of decisions concerning damages for sexual abuse, including image based abuse, since the previous edition. This book is edited by a working party of the Judicial College, under the chairmanship of The Hon. Mrs Justice Lambert DBE. The members of the working party are all lawyers and personal injury specialists: Stuart McKechnie KC, barrister; Steven Snowden KC, barrister; Lisa Sullivan, Master of the Queen's Bench Division; and Richard Wilkinson, barrister.

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